I work with organizations that fund disease research to convey new ideas and progress to donors, partners, and patients. A decade of background in “translation” of Huntington's disease research for lay people is an asset when shaping clear messaging for scientific audiences. Capabilities include: 

• Patient and community-facing lay science blogs and articles

• Development, writing, and editing of community and investor publications

• Preparation of newsletters for research donors

• Organization of Scientific Advisory Board review of grant initiatives; reports on SAB meetings and investment recommendations

• Presentations and plain-language written summaries of progress made by supported scientists

• Real-time or summative coverage of scientific conferences

• Stewardship of major research donors

With seven years experience organizing review of applications across multiple initiatives at a rare disease grantmaking organization, I know how language and structure can influence the perception of science. Whether you are submitting a paper to a scientific journal or preparing a grant submission to the NIH or a nonprofit funding source, I can help with copyediting, refinement of language, scientific input, or a deep structural dive. Reach out about:

• Individual NIH K, R, awards; institutional applications such as COBRE

• Short and long-form foundation/nonprofit applications (Simons, Whitehall, neurodegenerative disease-focused orgs)

• Workshops on lay science writing for graduate students and postdocs

As a research and patient engagement leader within nonprofit, I worked with many partners in the biotech and pharmaceutical space to review and refine patient and HCP-facing materials. I apply my Huntington's disease subject matter expertise and deep community experience in the following areas: 

• Medical writing of clinical manuscripts and grants

• Moderation/development of content for patient/HCP advisory panels

• Review of patient and family-facing collaterals such as trial pamphlets and info sheets

• Preparation of data summaries

• Crafting/review of community-facing letters to accompany investor communications

• Presentations on MOA/trial design

• Review of clinical trial protocols and regulatory submissions with attention to community needs

• ICF language review

• Consulting on site selection

• Non-branded website content development

I am comfortable working with a diverse range of stakeholders across a variety of media. I’ve developed and helped to refine written materials and science-centered presentations (even performances!) in collaboration with industry representatives, donors, government officials, and patients within the international rare disease community. I am happy to discuss how I can help convey an impactful message to your audience.